Patient advocacy
3 unrolled threads about patient advocacy, each one readable on a single page.
- Feb 9, 2025
Had my first healthcare worker refuse to mask My chart says I’m immune compromised & require staff to mask. The facility had a policy that if asked, staff will wear I was told “no I need to brea...
SummaryAn immunocompromised patient had a healthcare worker refuse to wear a mask despite their medical chart requirements and the facility's masking policy, citing claustrophobia and breathing concerns. The patient stood firm, escalated to management to get another masked worker, and filed a complaint, highlighting how vulnerable patients shouldn't have to fight for basic safety accommodations in medical settings.14 tweets2 min read - Nov 4, 2024
Me in ER with severe dehydration & tachycardia from POTS flare (undiagnosed at time) Dr: “How much did you drink last night?” Me: “I don’t drink” Dr: “Tell the truth - if you don’t we can’t hel...
SummaryA patient experiencing a severe POTS (postural orthostatic tachycardia syndrome) flare was dismissed and accused of binge drinking by an ER doctor despite repeated denials and an alcohol allergy, then diagnosed with anxiety once alcohol was ruled out. This misdiagnosis delayed proper treatment and reflects a broader pattern of POTS patients being gaslit and ignored by healthcare providers who don't recognize the condition's symptoms.25 tweets3 min read - Nov 12, 2024
“If somebody doesn't help me, I'm going to die," she recalls wailing, watching doctors and nurses pass her by. "Somebody said to me, 'I don't know what you expect me to do,'" she said. "'You're a hea...
SummaryA woman shares her harrowing experience of being repeatedly dismissed by doctors after a hysterectomy, despite clear signs of serious internal bleeding that nearly killed her. The thread highlights the documented gender gap in healthcare where young women's symptoms are often ignored, emphasizing the importance of having an advocate and trusting your own body's signals.19 tweets2 min read